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Carmen's Story: Fighting Rasmussen Encephalitis and Advocating for Over 400 Patients Worldwide

We are building the largest bio-repository ever created for Rasmussen Encephalitis, with nearly 200 patient samples.

Collected

455€

Goal

150.000€

Donations

6

Left

271 days

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Investigación científica Enfermedad mental Salud Enfermedades raras

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Published: 27 Jan 2025

Carmen, a young woman from Barcelona, was diagnosed with Rasmussen Encephalitis (RE) just one year ago. This life-altering condition has caused her immune system to attack one hemisphere of her brain, leading to significant brain damage.

Rasmussen Encephalitis is an exceptionally rare and devastating neurological disease, affecting only 2.4 cases per 10 million people, primarily children under the age of 10. Despite its rarity, the impact is profound, leaving patients and their families grappling with immense challenges, limited treatment options, and no known cure.

At REsolve, we are determined to change this reality. We are pioneering efforts to create the largest bio-repository ever dedicated to RE research. Our mission is clear: to end the suffering caused by RE for all patients.

Your donation directly supports cutting-edge research and global collaboration among experts, giving hope to all the patients we’ve identified globally. Together, we can transform lives and bring an end to the challenges faced by families living with this condition.

Every contribution, no matter the size, brings us closer to a cure. Will you join us in the fight against Rasmussen Encephalitis? Carmen, and countless others like her, are counting on you. 

The REsolve Project is dedicated to transforming the landscape of Rasmussen encephalitis research, treatment, and patient care. Our mission is to unite leading scientific minds, medical experts, and patient communities to accelerate groundbreaking discoveries and innovative therapies. Through collaboration, advocacy, and cutting-edge research, we strive to bring hope, improve outcomes, and ultimately redefine what’s possible for those affected by this rare neurological disorder. 

Donators (6)

Alonso

20€

5 days ago

javier

100€

22 days ago

Marta

100€

29 days ago

Anonymous

100€

34 days ago

Anonymous

100€

34 days ago

Manuel

35€

36 days ago

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